Recognizing the extraordinary challenges faced by patients of color with rare diseases and the need to identify and promote evidenced-based solutions to alleviate the disproportionate burden of rare diseases on these communities and supporting the recognition of the last day in February as "Rare Disease Day".
Active· Referred to the Subcommittee on Health.
Introduced
Feb 28, 22
Passed House
Pending
Passed Senate
Pending
Sent to President
Pending
Signed into Law
Pending
Introduced
Feb 28, 22
Passed House
Pending
Passed Senate
Pending
Sent to President
Pending
Signed into Law
Pending
Executive Summary
This resolution supports the designation of Rare Disease Day and recognizes the importance of decreasing rare diseases, especially among people of color.
Action Timeline
5
FEB 28, 2022•IntroReferral
Introduced in House
FEB 28, 2022•IntroReferral
Introduced in House
FEB 28, 2022•IntroReferral
Sponsor introductory remarks on measure. (CR E185-186)
185Yea
186Nay
0NV
FEB 28, 2022•IntroReferral
Referred to the House Committee on Energy and Commerce.