H.R. 482 · 117th Congress · House

Newborn Screening Saves Lives Reauthorization Act of 2021

In Congress· Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Introduced
Jan 25, 21
Passed House
Jun 23, 21
Passed Senate
Pending
Sent to President
Pending
Signed into Law
Pending

Executive Summary

Newborn Screening Saves Lives Reauthorization Act of 2021

This bill reauthorizes through FY2026 and revises several programs and activities relating to newborn screening for certain conditions and genetic, endocrine, and metabolic diseases.

Among its changes, the bill reauthorizes and makes mandatory

  • the Hunter Kelly Research Program at the National Institutes of Health, and
  • national surveillance activities conducted by the Centers for Disease Control and Prevention.

The bill also aligns statutory requirements for research on non-identified newborn blood spots with federal regulations governing research on human subjects. These blood spots are collected as part of newborn screening programs, and some states make them available for biomedical and public health research. Under current regulations, research on non-identified bio-specimens such as blood spots is not considered to be research on human subjects, to which additional protections apply.

Previous Versions

00Jan 25, 2021

Newborn Screening Saves Lives Reauthorization Act of 2021

This bill reauthorizes through FY2026 and revises several programs and activities relating to newborn screening for certain conditions and genetic, endocrine, and metabolic diseases.

Among its changes, the bill reauthorizes and makes mandatory

  • the Hunter Kelly Research Program at the National Institutes of Health, and
  • national surveillance activities conducted by the Centers for Disease Control and Prevention.

The bill also aligns statutory requirements for research on non-identified newborn blood spots with federal regulations governing research on human subjects. These blood spots are collected as part of newborn screening programs, and some states make them available for biomedical and public health research. Under current regulations, research on non-identified bio-specimens such as blood spots is not considered to be research on human subjects, to which additional protections apply.

Action Timeline

12
  1. JUN 24, 2021IntroReferral

    Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

  2. JUN 23, 2021Floor

    Pursuant to the provisions of H

    Res. 486, proceedings on H.R. 482 are considered vacated.

  3. JUN 23, 2021Floor

    Passed/agreed to in House

    Pursuant to section 11 of H. Res. 486, and the motion offered by Mr. McGovern, the following bills passed under suspension of the rules: H.R. 482; H.R. 704; H.R. 961, as amended; H.R. 1314; H.R. 2571, as amended; H.R. 2679, as amended; H.R. 2694; H.R. 2922, as amended; H.R. 3182; H.R. 3239; H.R. 3241, as amended; H.R. 3723; H.R. 3752; H.R. 3841; S. 409; and S. 1340.(consideration: CR H3026-3052; text: CR H3026-3027)

    3026Yea
    3052Nay
    0NV
  4. JUN 23, 2021Floor

    Pursuant to section 11 of H

    Res. 486, and the motion offered by Mr. McGovern, the following bills passed under suspension of the rules: H.R. 482; H.R. 704; H.R. 961, as amended; H.R. 1314; H.R. 2571, as amended; H.R. 2679, as amended; H.R. 2694; H.R. 2922, as amended; H.R. 3182; H.R. 3239; H.R. 3241, as amended; H.R. 3723; H.R. 3752; H.R. 3841; S. 409; and S. 1340. (consideration: CR H3026-3052; text: CR H3026-3027)

    3026Yea
    3052Nay
    0NV
  5. JUN 22, 2021Floor

    Mr

    Pallone moved to suspend the rules and pass the bill.

  6. JUN 22, 2021Floor

    Considered under suspension of the rules. (consideration

    CR H2940-2942; text: CR H2940-2941)

    2940Yea
    2942Nay
    0NV
  7. JUN 22, 2021Floor

    DEBATE - The House proceeded with forty minutes of debate on H.R. 482.

  8. JUN 22, 2021Floor

    At the conclusion of debate, the Yeas and Nays were demanded and ordered

    Pursuant to the provisions of clause 8, rule XX, the Chair announced that further proceedings on the motion would be postponed.

  9. FEB 02, 2021Committee

    Referred to the Subcommittee on Health.

  10. JAN 25, 2021IntroReferral

    Introduced in House

  11. JAN 25, 2021IntroReferral

    Introduced in House

  12. JAN 25, 2021IntroReferral

    Referred to the House Committee on Energy and Commerce.

Committees

3

Health, Education, Labor, and Pensions Committee

sshr00

Referred: Jun 24, 2021

Active

Health Subcommittee

hsif14

Referred: Feb 2, 2021

Active

Energy and Commerce Committee

hsif00

Referred: Jan 25, 2021

Active